illiam is steadily progressing. Once he was moved to the surgical floor, he no longer needed a bunch of wires. They removed 2 IV’s, 1 arterial line, the leads for his heart monitor, and the nasal cannula he needed to get enough oxygen due to the RSV. This makes him look way better as well as much easier to hold. He still has an IV and a oxygen sensor as well as a horrible looking drain that runs along the ridge of his new forehead that catches as much fluid build-up as possible and drains it out a hold behind his ear. I don’t think it causes much pain but it made me a little weak in the knees when I first saw it. I will likely post a picture of our little warrior tomorrow.
William is proving himself to be quite the fighter. He is drinking more but he thrashes all over the place, moving his head back and forth, every time we give him his sippy cup of juice. He is drinking, just not very much or very voluntarily. Eating is still non-existent. Each time we’ve given him food he has either thrown it up immediately or gagged so much we just stopped trying to give him any. The care team feels this is more likely from him feeling sick than from him recovering from his surgery. He still needs pain meds regularly but seems to be comfortable most of the time.
We have had a stream of wonderful visitors to see him and yesterday was a day spent mostly with visitors. One encouraging thing William has been doing when visitors come is waving cheerfully at them. This gives us good hope that he is on the mend and slowly coming out of his sickness and surgical fog. One fear that we have experienced is that his personality will change as a result of the trauma to his head but seeing him wave at visitors or shake his head “no” at people is the William we know and love.
Elizabeth and I have been meditating on Psalm 119:72-77
Your hands have made and fashioned me;
give me understanding that I may learn your commandments.
Those who fear you shall see me and rejoice,
because I have hoped in your word.
I know, O Lord, that your rules are righteous,
and that in faithfulness you have afflicted me.
Let your steadfast love comfort me
according to your promise to your servant.
Let your mercy come to me, that I may live;
for your law is my delight.
This seems to be a fitting passage for our son because not only has he been fearfully and wonderfully made but God’s children (those who fear Him) who have seen William really have rejoiced. One of our prayers is that all of our children would learn, understand, and treasure the commandments of God. There is no age where obedience to God’s laws is not required. Whether you are 13 months or 97 God’s laws must be not only obeyed, but loved and cherished.
We also know that the Lord does indeed send affliction. However when He sends affliction to His children, it is not sent in anger, wrath, or carelessness, but in faithfulness. Think about that for a second, the Lord faithfully afflicts His children. He goes out of His way to send trials, tribulations, and yes even affliction. I am convicted that as His children, the best response we can have when faced with this affliction is to remember that He is a good Father. His ways are higher than our ways and His thoughts higher than our thoughts (Isa 55:9).
We don’t have to understand why we just have to remember Who.
That who is our Father in Heaven and He is always after something good even when it comes wrapped in tears and sorrow.
There is a song we taught our kids called All Things Bright and Beautiful.
All things bright and beautiful
All creatures great and small
All things wise and wonderful
The Lord God made them all
Each little flower that opens
Each little bird that sings
He made their glowing colors
He made their tiny wings
He gave us eyes to see them
And lips that we might tell
How great is God Almighty
Who has made all things well!
If you belong to Jesus trust that our God is great and that He has made all things well.